Desperate to contact people with Charcot's in Australia

[melanie6]

If there are any people with Charcot's foot in Australia or any professionals that know how to treat this condition in Brisbane - who really know something about it - and have been successful in the past. Please contact me melanie6@optusnet.com.au because I am desperate for help.

Thankyou.
Melanie

[FootDoc]

I would recommend that you find and Internet diabetic support forum where you might obtain the mainly anecdotal lay information and social interaction which it seems is your desire. Use any search engine.

Melanie,
Depends on what you are after. ?? i.e. do you or a family member have a charcot's foot, are you simply after more info, are you a health practitioner and have a client with diagnosed or suspected charcots etc??

I would suggest contacting the major Brisbane hospitals with existing teams/units of specialized health practitioners such as podiatrists, orthotists, endocrinologists, vascular surgeons etc who have protocols in place to diagnose and treat charcots. You may also find some community practitioners (podiatrists , orthotisits , wound management nurses) who also have experience in this area)
Failing that try contacting the Queensland Wound Management Association ( http://www.awma.com.au/state/qld.php ) could point you in the right direction. There is most likely reliable contacts to be found on Qld state podiatry association websites as well. Look for those people who have experience and function as part of a multidisciplinary team.

Good luck
Donna
(Wound CNC Victoria)

Originally Posted by melanie6

If there are any people with Charcot's foot in Australia or any professionals that know how to treat this condition in Brisbane - who really know something about it - and have been successful in the past. Please contact me melanie6@optusnet.com.au because I am desperate for help.

Thankyou.
Melanie

[flosemae]

I HAVE CHARCOT AND AM IN AN ARIZONA BRACE RIGHT NOW....NO SURGERY YET....I KNOW OF A WEB SITE THAT HAS A MAN ON THERE THAT HAS HAD A SURGERY FIXATION ON HIS CHARCOT FOOT ..HIS NAME IS MARTY AND HE IS ON THE WEB SITE dLIFE AND LOOK FOR "OOOOH MY FOOT" AND THERE IS INFO AND A PICTURE OF HIS SURGERY...HE IS IN A NORMAL SHOE THIS MONTH ...PLEASE LOOK AT IT..I HAVE ONLY SEEN THAT ONE SUCCESSFUL SURGERY ....I HATE CHARCOT BUT I HAD RATHER DEAL WITH THIS ARIZONA BRACE THAN TO LOOSE MY FOOT....I HAVE LEFT MIDFOOT CHARCOT AND IT IS DEFORMED AND MY RIGHT FOOT IS DEFORMED ALSO ...THE PODIATRIST I GO TO THINKS IT WAS CHARCOT ALSO AND THE ORTHO DR DID NOT DIAGNOSE IT AS CHARCOT...FLOSEMAE

[flosemae]

well i went to my podiatrist today and i may have charcot in the other foot also...lucky me..he said it may be arthritist...i am off my feet for 2 weeks then they will do another xray to see if it IS charcot...i may end up with an arizona brace on both feet...but of course i will deal with it.......has anyone had both feet with charcot if yes let me know...thanks

Originally Posted by flosemae

I HAVE CHARCOT AND AM IN AN ARIZONA BRACE RIGHT NOW....NO SURGERY YET....I KNOW OF A WEB SITE THAT HAS A MAN ON THERE THAT HAS HAD A SURGERY FIXATION ON HIS CHARCOT FOOT ..HIS NAME IS MARTY AND HE IS ON THE WEB SITE dLIFE AND LOOK FOR "OOOOH MY FOOT" AND THERE IS INFO AND A PICTURE OF HIS SURGERY...HE IS IN A NORMAL SHOE THIS MONTH ...PLEASE LOOK AT IT..I HAVE ONLY SEEN THAT ONE SUCCESSFUL SURGERY ....I HATE CHARCOT BUT I HAD RATHER DEAL WITH THIS ARIZONA BRACE THAN TO LOOSE MY FOOT....I HAVE LEFT MIDFOOT CHARCOT AND IT IS DEFORMED AND MY RIGHT FOOT IS DEFORMED ALSO ...THE PODIATRIST I GO TO THINKS IT WAS CHARCOT ALSO AND THE ORTHO DR DID NOT DIAGNOSE IT AS CHARCOT...FLOSEMAE

I was just reading about this condition and how hard it can be to diagnose.

I work (admin) for a company that makes orthotics/braces. How is your Arizona brace working out? I see the orders come in and out, but have little oportunity to hear from patients.