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Chronic Sesamoiditis - not sure where else to turn.

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  #1  
Old 27th December 2010, 09:19 AM
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Default Chronic Sesamoiditis - not sure where else to turn.

Hi

I am a 23 year old female (Perth, Western Australia) with chronic sesamoiditis spanning the last 3 years, I have been unable to walk without chronic pain for the last 12 months. In the last 3-6 months I've become practically immobile with pain.

Over the last 12 months I have seen a GP, Podiatrist, Physiotherapist, Sports Doctor, and finally an Orthopaedic Surgeon. I had an X-Ray, Ultrasound and MRI which I was told all came back normal until the Surgeon looked at the MRI films and said that the medial sesamoid was not lit up on the MRI at all which was in fact abnormal. Up til this point no one has been able to give me a diagnosis on what was wrong.

The podiatrist gave me orthotics and told me never to walk barefoot or wear anything other than sneakers with the orthotics in them. I did this for 6 months along with Ultrasound therapy, icing, stretching, and a whole bunch of other completely useless things that the podiatrist and physiotherapist recommended. I then saw the sports doctor who wasn't happy with the orthotics and sent me back to the podiatrist to have them adjusted after 2 cortisone injections through the top of the big toe joint. The first injection gave me about 4 weeks of relief before it wore off very quickly. The second one did nothing. At the time the second injection was given I was placed in a rocker sole shoe for a couple of weeks to no avail.

He still wasn't happy with the old orthotics (only about 6 months old). These orthotics were fibreglass ones with a metatarsal dome in them. I then had another set made, they're made of some sort of foam stuff (I guess) with no dome which were made through Sportsmed. Still no relief, I was then placed in a Cam walker for 6 weeks between then and when I saw the Surgeon. This also made NO difference to the pain (which was still undiagnosed at this time).

After seeing the Surgeon he was quite sure that the problem was related to the sesamoids, briefly discussed surgical removal of the sesamoid but wanted me to have a bonescan to be sure of the problem. 2 days later I had the bonescan and another 2 days after that returned to the surgeon. The bonescan only showed "MILD" sesamoiditis and arthritis of the big toe joint. The Surgeon changed his tune completely, not wanting to do a sesamoidectomy due to the high risk of complications. He said from a legal standpoint if the surgery left me unable to walk and I sued him, he would be in strife for performing the operation on a "mild" problem. He ordered a 3rd cortisone injection (in as many months), this time under CT.

I had that done - 45 minutes and 6 needles as they couldn't get it right - and still no relief. I've been walking on the side of my footquite consciously due to the pain and now have pain around the third metatarsal joint as well!

The Surgeon said if the injection didn't help to go back to him, which I am on the 14th of January, but I've decided I DON'T want the surgery as he has convinced me there is a high risk rate, the surgery has an unpredictive success rate and I will never run or do any high impact exercise again after it. I may not even get any relief from the pain. I've not found ANY cases where a sesamoidectomy provided the intended relief, infact everything I've read is the opposite.

PLEASE can anyone tell me what else I can try? I'm at my wits end. I'm a 23 year old female who is essentially immobile due to this pain. I can't walk let alone exercise on the foot. I've got very limited range of motion in the big toe joint and cannot even flex my toe upwards 50% of the way as my good foot. The pain is close to unbearable and I've hit a brick wall with every "specialist" I've seen about this. I have visible swelling along the bottom of the foot and it is very sensitive to touch, sometimes it is also very red. Not even icing and NSAIDS can control the swelling, let along the pain.

Can you help????

Edit: The MRI also showed a Mortons Neuroma between the 3rd and 4th metatarsals but I've been assured this is not related to the other pain I have. I have noticed the worse my other pain gets though the more I notice MN symptoms (tingling/numbness) in the 3rd and 4th toes, I feel this is because I walk on the side of my foot and therefore compressing that nerve even more.
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Old 27th December 2010, 02:01 PM
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Default Re: Chronic Sesamoiditis - not sure where else to turn.

DISCLAIMER: THE FOLLOWING IS OFFERED GRATIS AS GENERAL INFORMATION ONLY, AND, AS SUCH, MAY NOT BE APPLICABLE TO THE SPECIFIC QUESTIONER AND/OR HIS/HER PROBLEM. IT IS CLEARLY NOT BASED ON ACTUAL KNOWLEDGE AND/OR EXAMINATION OF THE QUESTIONER OR HIS/HER MEDICAL HISTORY, AND IT CAN NOT AND SHOULD NOT BE RELIED UPON AS DEFINITIVE MEDICAL OPINION OR ADVICE. ONLY THROUGH HANDS-ON PHYSICAL CONTACT WITH THE ACTUAL PATIENT CAN ACCURATE MEDICAL DIAGNOSIS BE ESTABLISHED AND SPECIFIC ADVICE BE GIVEN. NO DOCTOR/PATIENT RELATIONSHIP IS CREATED OR ESTABLISHED OR MAY BE INFERRED. THE QUESTIONER AND/OR READER IS INSTRUCTED TO CONSULT HIS OR HER OWN DOCTOR BEFORE PROCEEDING WITH ANY SUGGESTIONS CONTAINED HEREIN, AND TO ACT ONLY UPON HIS/HER OWN DOCTOR’S ORDERS AND RECOMMENDATIONS. BY THE READING OF MY POSTING WHICH FOLLOWS, THE READER STIPULATES AND CONFIRMS THAT HE/SHE FULLY UNDERSTANDS THIS DISCLAIMER AND HOLDS HARMLESS THIS WRITER. IF THIS IS NOT FULLY AGREEABLE TO YOU, THE READER, OR YOU HAVE NOT ATTAINED THE AGE OF 18 YEARS, YOU HEREBY ARE ADMONISHED TO READ NO FURTHER. ************************************************** * Far be it for me to convince you to have a sesamoidectomy. But if, as I suspect, only one of them is involved and I was absolutely convinced the problem was that sesamoid and I had spent 3 years of failure with conservative care, and symptoms were as dramatically disabling as you assert, surgical removal is precisely the route I would recommend in a patient of my own. I cannot speak to your results, but I have seen very few serious complications in my patients after a sesmoidectomy and I have performed many. Again . . I am not and cannot consult on your specific case, but given a generic case such as you appear to have described, that would be my suggested course of action.
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Old 27th December 2010, 02:26 PM
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Default Re: Chronic Sesamoiditis - not sure where else to turn.

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Originally Posted by FootDoc View Post
Far be it for me to convince you to have a sesamoidectomy. But if, as I suspect, only one of them is involved and I was absolutely convinced the problem was that sesamoid and I had spent 3 years of failure with conservative care, and symptoms were as dramatically disabling as you assert, surgical removal is precisely the route I would recommend in a patient of my own. I cannot speak to your results, but I have seen very few serious complications in my patients after a sesmoidectomy and I have performed many. Again . . I am not and cannot consult on your specific case, but given a generic case such as you appear to have described, that would be my suggested course of action.
Thank you for your response. If you don't mind sharing your experiences, what would the success rate be for a sesamoidectomy? I had an entire list of questions to ask the Surgeon upon my return after the bonescan but he was so against even considering it that I didn't get a chance to ask. I've tried to research it online but am not finding much information either. I will of course ask the surgeon when I see him again on the 14th of January but any help in the meantime would be appreciated, as being a surgeon, he won't really advise on treatment options that don't involve surgery.

He said the main concerns were that the remaining sesamoid would fracture and then need to be removed as well, and that I would develop a bunion or my big toe could end up sticking straight up due to the changes to the tendon once the sesamoid was removed, thus requiring more surgery. He told me in no uncertain terms that there is a great risk I would not get the relief I am searching for from this surgery. I haven't been able to find any information about success rates etc of this surgery online so can only go by what the surgeon has told me. At first visit I was adamant I just wanted the surgery because I am so sick of the pain, but in the subsequent visit after the bonescan I felt like the surgery would only cause further complications.

Besides surgery, is there anything else you could suggest that may help? I was extremely active before it got really bad and I desperately want to return to running etc. Everything online seems to indicate that sesamoiditis can generally be "fixed" without a sesamoidectomy, but I've already tried all the conservative measures (that I know of, anyway).

In your opinion (I know you can't give specific advice, but perhaps just in your experience), if the proper care was taken, rest, orthotics to correct flatfooted-ness and overpronation etc and the problem still wasn't improving, why would that be? Do you think it's possible I still haven't gotten a correct diagnosis, or there is more going on than this?

Thanks again for your time. I know you are limited in what you can tell me but anything would be appreciated.
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Old 27th December 2010, 07:07 PM
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Default Re: Chronic Sesamoiditis - not sure where else to turn.

DISCLAIMER: THE FOLLOWING IS OFFERED GRATIS AS GENERAL INFORMATION ONLY, AND, AS SUCH, MAY NOT BE APPLICABLE TO THE SPECIFIC QUESTIONER AND/OR HIS/HER PROBLEM. IT IS CLEARLY NOT BASED ON ACTUAL KNOWLEDGE AND/OR EXAMINATION OF THE QUESTIONER OR HIS/HER MEDICAL HISTORY, AND IT CAN NOT AND SHOULD NOT BE RELIED UPON AS DEFINITIVE MEDICAL OPINION OR ADVICE. ONLY THROUGH HANDS- ON PHYSICAL CONTACT WITH THE ACTUAL PATIENT CAN ACCURATE MEDICAL DIAGNOSIS BE ESTABLISHED AND SPECIFIC ADVICE BE GIVEN. NO DOCTOR/PATIENT RELATIONSHIP IS CREATED OR ESTABLISHED OR MAY BE INFERRED. THE QUESTIONER AND/OR READER IS INSTRUCTED TO CONSULT HIS OR HER OWN DOCTOR BEFORE PROCEEDING WITH ANY SUGGESTIONS CONTAINED HEREIN, AND TO ACT ONLY UPON HIS/HER OWN DOCTOR’S ORDERS AND RECOMMENDATIONS. BY THE READING OF MY POSTING WHICH FOLLOWS, THE READER STIPULATES AND CONFIRMS THAT HE/SHE FULLY UNDERSTANDS THIS DISCLAIMER AND HOLDS HARMLESS THIS WRITER. IF THIS IS NOT FULLY AGREEABLE TO YOU, THE READER, OR YOU HAVE NOT ATTAINED THE AGE OF 18 YEARS, YOU HEREBY ARE ADMONISHED TO READ NO FURTHER. ************************************************** *******.All surgeries and medical treatments pose potential complication. Doctors must weight those complication as related to his/her previous experiences in determining the advisability of any procedure. If a doctor has performed a significant numbers of a certain procedure and has had a high incidence of undesirable results, I would take that very seriously in any decision to have HIM or HER perform the procedure. But that does not necessarily mean that other doctors have had the same experience. In regard to the complications you have indicated, they are indeed possibilities, but in my PERSONAL experience, such has rarely occurred. A sesamoidectomy should not be considered unless one is certain as to the diagnosis and that all reasonable conservative measures have been attempted without significant results. Forums such as this are not appropriate venues for one to make a decision regarding the treatment of a specific individual case. You would be far wiser to obtain an independent second opinion from another well-vetted specialist
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Old 27th December 2010, 09:20 PM
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Default Re: Chronic Sesamoiditis - not sure where else to turn.

I suffered from similar problems to you although my pain was in all my sesamoid bones, not just one! But just to give you another person's experience I ended up having all 4 sesamoids removed individually. I did have complications with the big toe sticking up on one foot but only after the 2nd sesamoid bone had been removed; I did not have any problems at all with just one removed and the pain was completely relieved.

As the Foot Doc says I wouldn't say to you that you should have your sesamoid removed but you stated that everything you had read was negative so I'm giving you a positive view! I'm glad I had mine done as it did relieve my pain. I continue to have foot pain issues and still require orthotics but do not believe this is related to the sesamoid removal, my pain is not under the big toe joint.

I have had lots of foot surgery in my life and you are right to be cautious about entering into it but I believe you have to weigh up how much your foot pain is affecting your life. There comes a point when surgery is the right option and can improve things but only you can decide when you reach that point.

I hope things work out for you.
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Old 27th December 2010, 11:30 PM
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Default Re: Chronic Sesamoiditis - not sure where else to turn.

When BOTH sesamoids are removed on one foot there is a high likelihood of cock-up toe due to damage to both tendons of the flexor hallucis brevis muscle. That is not generally the case when only one is removed.
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Old 28th December 2010, 12:58 AM
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Default Re: Chronic Sesamoiditis - not sure where else to turn.

Thank you very much for your response.

I will seek a second opinion from another Surgeon and review my options from there.
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Old 28th December 2010, 04:26 PM
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Default Re: Chronic Sesamoiditis - not sure where else to turn.

Please post back with with the results of your second opinion.
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Old 5th January 2011, 08:00 PM
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Default Re: Chronic Sesamoiditis - not sure where else to turn.

I would also be intrigued by your second opinion/follow up.

Reading your post has practically mirrored my own experiences. After 5 years of (fibular) sesamoidititis, prob mild also as I was told today it was a 'boring' kind of sesamoiditits and trying all the same treatments (except the walking cast as they felt it was pointless) the consultant has told me today there are no other treatments worth trying and surgery would be the only option or stay as I am. He also said there was only a 50% chance of success.
Saying that after reading articles, this forum and many other forums I do feel a little more boyant about the prospect of having the surgery but I am definately going to get a second opinion. I am waiting for another MRI scan to be scheduled as my last one was 3 years ago now and then see what is said after that.

Good luck I look forward to seeing your update.
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Old 22nd January 2011, 07:11 PM
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Smile Re: Chronic Sesamoiditis - not sure where else to turn.

I was here on this site a couple of months ago looking for some hope for my sesamoiditis. I hurt my sesamoid bones while foolishly walking/dancing barefoot on a hard floor. (It was too hot to bother with shoes in August.) It didn't even hurt while I was doing that. It was a day or two later when the pain began and it has done nothing but get worse. By late September I had progressed to limping, which sent me to a podiatrist. He told me that if I wanted the sesmoid bones to heal, I would have to stay off them. They were so tender, red, and swollen, I couldn't even touch them, let alone walk on them. It hurt to push the gas pedal to drive and even the weight of the blankets on my bed hurt them at night. I have it in both feet, my right one worse than my left. Well, how do you stay off your feet if you have to work and have a life? He gave me some felt pads to wear under the arches of my feet, and it was a relief to have the pressure off the balls of my feet, but, of course the felt pads hurt my arches. After taking 12-hour Aleve and resting and icing my feet every day after work for 4 weeks with no change in my condition, I went back to the doctor who prescribed oral steroids. I had high hopes, but they didn't do a thing for me, well, except it did help the arthritis in my thumb. After another 2 weeks went by, I went back for the steroid shot in the ball of my foot, which burned like fire. Yeow! Still no results. At the next doctor visit, he was talking about surgery to remove them. Well, I was going to try everything in my power to avoid surgery, so I sucked up all the patience I could muster and took off work (office job, mainly sitting) for 3 weeks, using saved up sick days and vacation days to just sit on my butt all day and let my retired husband wait on me hand and foot. After 3 long weeks, still no change!!! But I know that must have done some good. So I just decided I was going to wait it out; surely by body would heal itself if I could just be patient. I went back to work, moving slowly, doing as little on my feet as possible, letting my husband do the Wal-mart shopping, eating take out food, not doing any housework, not going anywhere, not getting to go Christmas shopping and just doing a lot of reading, watching TV and movies, etc. It was hard not to get depressed. The hubby bought me a cushy bathtub mat to stand on in the shower and fatigue mats to stand on in the kitchen and bathroom. I bought some soft shoe insole pads and cut out the place where my sesamoids rest and started wearing those. It was a relief to switch from wearing the felt pads. The cold weather has helped, since my feet are cold enough that I don't have to ice them. Finally after 3+ months of babying my feet, they are suddenly feeling much better now!! It's January and I'm trying to walk normally with custom orthotics, but now my heel and side of my foot hurt from walking on them for so long. I'm so thrilled that I will get my life back; I am dying to dance and powerwalk again. I will never again take my feet for granted!! So I am back on this site to give hope to anybody who has this condition. It won't be easy, but my doctor was right: you have to REST YOUR FEET and sacrifice. Don't give up hope! Best wishes to ya.
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Old 29th January 2011, 03:26 AM
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Unhappy Re: Chronic Sesamoiditis - not sure where else to turn.

I hadn't heard of this condition until yesterday when I was searching on the internet to try and figure out the pain in my foot. I think this is what I have but haven't been to the doctor yet. The pain is now excruitiating and I can't take any more pain killers for fear of overdosing! Hence it's half 3 in the morning and I am on the sofa with my foot raised. I'm at a loss with the pain - never felt anything so bad! Just wanted to know how long this is going to go on for? I'm trying not to walk. My big toe and ball of my foot is swollen. Is there any chance of a quick heal or is this likely to drag on?
Yours in pain...
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Old 29th January 2011, 07:23 AM
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Angry Re: Chronic Sesamoiditis - not sure where else to turn.

Hello All, it has been a year and I have still not been able to heal my sesamoiditis in the right toe. It is difficult. I wear specially made insoles, I've attended therapy, I ice my foot, I take calcium and Cetyl-M supplements for bone strength and reduction in inflammation, and I hardly walk anywhere. I ride a bicycle to class and back home. I rest my feet and use a stationary bike for exercise. Yet, the pain is still there. I refuse to get cortisone injections and surgery because I have not heard of any success from these methods. I would like to try the boot but I doubt it will help, since I have already greatly reduced standing and walking in my daily life. I do not know what else to do. I hope to get an MRI, perhaps that may show something that x-rays didn't, but other than this, I am just hoping to hear a success story somewhere. Good Luck to you all.
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Old 19th February 2011, 10:11 AM
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Thumbs up Re: Chronic Sesamoiditis - not sure where else to turn.

Hello, I am sorry to hear about your persistent pain. Are you taking anything for the pain? I think you are right about skipping in the cortisone injections at this point. If they didn't help you much the first two times, they won't help now, and can actually cause damage if over used.

To me it doesn't sound like you have much of a choice but to have the surgery. There was one post that said his was success full, and I have seen many others that were successful as well. If you have that much of a problem with it, at your age, don't you have to get it fixed? I'm sorry, but that is the only way I see it.

I don't have a happy story for you, but it is much different, and for the amount of time I had without pain, the surgery was worth it. Two of my siesmoids were completely broken off, and floating in the bottom of my foot. I had to live with that for six months. I could feel the shards cutting into my soft tissue with every step. I also had a plantar plate rupture that had to be repaired.

My surgery went fine, mechanically. But within a couple of days, my pain got worse, real quickly. I had developed a staff infection from the operating room. That seriously sucked. But, its over now, and for two years, I could walk around decently. But, as the doctor above mentions, the problems start when you take out two. I had a surgery on the opposite leg's knee a few years later. I also had to limp around with that injury for months, and all of the pressure was unfortunately focused on the foot that had been operated on. Now I am in pain again.

Like I said, my situation is different. Yours seems to be the best case scenario. I am not a doctor, and not qualified to give you medical advise; but from my experience, I would do it again. And my experience was worse to begin with. You have the odds in your favor. And you cant live with this problem for possibly eighty years can you? Good luck either way.
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Old 4th March 2011, 01:34 AM
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Default Re: Chronic Sesamoiditis - not sure where else to turn.

I had my sesamoid removed 6 weeks ago the pain has gone and its healing well but now I am in pain with the stiffness of the joint as it has been fractured for 2 years and I have been walking on the side of my foot and the last 6 weeks of not walking anywhere have not helped. Not sure what to do to get my big toe moving and pushing off on it and just back to how it was before am weightbearing now but still walking on the side getting frustrated now but the doc did say 6-8 weeks to heal so maby I am rushing it a bit.
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Old 16th March 2011, 02:27 AM
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Smile Re: Chronic Sesamoiditis - not sure where else to turn.

This is an update to Reply #10. I last posted in January, 2011. Now it's mid-March and guess what! I don't have any more pain in my sesamoids!!! It has taken 6 l-o-n-g months of babying my feet, but I persisted, and finally I can say that I have healed. Once the inflammation calmed down, they started healing more quickly. I am still wearing my custom orthotics for a while longer to make sure that I don't have a setback. I am glad that I did not choose surgery, but every case if different, of course. Just wanted to put in a success story. Hard to find one on these sites.
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Old 18th March 2011, 12:27 PM
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Default Re: Chronic Sesamoiditis - not sure where else to turn.

Unfortunately, there is no cure other than don’t do anything high impact with your foot. I have had sesamoditis for 2 years. I have a Bipartitie sesamoid in my left foot. I have tried everything possible recommended to me by teh many doctors I have seen - I have read some people have gone to physios to treat their problem, a complete waste of time they can’t do nothing because it is a pressure related inury – if there is stiffness then they can.

Doctors generally sound like they know what they are talking about and use technical words to sound like they know, but actually they don’t know anything about this condition and they simply need to appear that they do.

The fact of the matter is when you get sesamoiditis you are stuck with it for life and any physical sports are no longer an option - you must stop all high impact physical exercising as it will just make it even worse, so running, dancing all must be stopped. Only walking is acceptable and must simply accept you have this condition and try to best live with it. When you get sesamoiditis it is too late to do anything other than trying to accept you have this unfortunate condition.

With regards to post 15 – trust me the pain will be back. It can come and go. It has happened to me – in the two years I have had it I have been pain free for a couple of month and bang it is back.
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Old 3rd May 2011, 08:47 PM
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Default Re: Chronic Sesamoiditis - not sure where else to turn.

I have had chronic sesamoiditis for 46 years in both feet!!!! I have been in casts, had rolling bars attached to the soles of my shoes, worn Birkenstocks, had orthotics, used metatarsal pads for 10 years, and now I wear MBT shoes. All attempts at pain relief are combined with ice ( and walking in the snow at -40 degrees) , ibuprofen, rest. The structure of my feet has changed... I suspect nerve damage and extra bone growth because of all the adjustments my foot has had to make. My lower back and knees have worked hard to compensate for the "walking on the side of the foot". What works? The MBT shoes are my best bet right now. My left foot refuses to cooperate all day. ( after all these years I like to think of it as having a life of its own) and my right foot is not as painful. The MBT shoes are the best suggestion I have because the shoe allows the foot to roll over the joint. Stores that sell these shoes are usually willing to let you try them out for a few days. Good luck...
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Old 28th July 2011, 02:37 PM
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Default Re: Chronic Sesamoiditis - not sure where else to turn.

Hello,

I am interested in the removal of all 4 of your sesamoids. I had one removed from each foot about 4 years ago and have still been living in daily chronic pain. My doctor doesn't recommend the removal of all 4 sesamoids because of effects it has on the big toe. Did you ever consider any sesamoid implants (if they make such a thing)? What did you do keep you big toe in line with your other toes?

Thanks so much!
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Old 1st August 2011, 01:13 PM
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Default Re: Chronic Sesamoiditis - not sure where else to turn.

I got sesamoiditis 10 months ago, over the following couple of months I had the sensation of walking on a lump under the ball of my foot and so was walking a lot on the side of my foot, trying to protect the sesamoid, and I eventually lost about 30-40 degrees range of motion in my big toe, x-ray showed no fracture or any kind of peculiarity really, and doctors just recommended rest and orthotics. At its worst, I could barely put weight on the foot, let alone walk on it, was limping heavily and felt severely handicapped. Rest only seemed to make it worse, weakening and stiffening the tendon.

About 7 months ago I started using a device called Correct Toes, invented by the foot doctor Ray Mcclanahan (his clinic is called Northwest Foot & Ankle). They are essentially toe-spreaders, but designed so that you can easily use them with shoes and while standing and walking, and generally while being active. Concurrent with this I also had to get new shoes that were flat and wide enough to let the toes spread out completely (initially crocs, but more recently vivo barefoot). The basic philosophy behind this device is that most foot problems are caused by the deformities and misalignments our feet gradually develop by wearing normal narrow shoes, and wearing Correct Toes allows you to correctly realign the bones and tendons of your feet and so makes it possible for your body to properly heal the injured structures.

It took my feet a long time to adjust to wearing the Correct Toes, I'm only now capable of wearing them all day long as intended. My sesamoiditis is still not fully healed, but ever since I started wearing them, I have seen slow but steady improvement in my condition. I have no significant pain while standing and walking, have fully restored the range of motion of my big toe, and have even gone out for a few short jogs without problems. What remains is some slight swelling and that my sesamoid still gets achy if I walk around too much, but I think wearing the Correct Toes will allow me to make a full recovery. They have also completely eliminated my even more longstanding problems with achilles tendinosis (4+ years) and knee pain.
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Old 7th September 2011, 10:45 PM
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Talking Large toe spacers to help sesamoiditis

Hello,

I read your entry with interest because I have had sesamoiditis for over a year. At least I think it's sesamoiditis. The x-rays showed no fracture, but the doctor told me I ought to have an MRI and also said that I should be well in 6-1/2 weeks to 2 months. At $500 I decided not to have the MRI. My left foot was so swollen that I could barely wear a shoe for months, and the 2-month period the doctor said came and went and still no improvement. Since I currently am not driving my car and live in a large city, I usually ended up walking, taking a bus, or taking a taxi (expensive). Needless to say, my life was pretty much at a standstill unless I had to go out. Added to everything else was the feeling that I was walking on an open blister all the time on the ball of my foot. I wore a dancer's pad and always walked on the outside of my foot for over 6 months. That helped for awhile, but I developed a knot on the outside of my foot because I wanted to avoid touching the pavement with the ball of my foot. I iced my foot, which helped short-term, and I also took Aleve, only about one per day, which helped tremendously but is very dangerous long-term. I finally got it down to 1/2 every couple of days because I was worried about the awful side effects and forums I read about it on the Internet. When I decided to go off the Aleve, I suffered all night long from intense itching and burning in my foot and into the next day until it pretty much left my system. I'm SO HAPPY that I've weaned myself from Aleve as it really is a nasty drug. But the itching and burning, though not as intense as before, was difficult to take, and the ball of my foot was still very tender.

My sister had told me about toe spacers, and I was only familiar with the smaller ones. After I read your post, I went on the podiatrist site and saw the larger ones. I found some at Walgreens yesterday, 2 to a package for $5.99, and bought those. Right now I only use them for the big toes, but I'm going to go out and buy some more so that I can have them between all my toes. I also got some Keen shoes, with a very wide toe box, and my toes have lots of room. It's kind of hard to believe, but my foot feels so much better today!!!!

This has been a VERY ROUGH year, and I won't ever take my feet for granted again. Initially I think I got sesamoiditis because I was wearing too-small shoes, started a walking regimen with way too much walking outright, and was wearing tight socks. The feet, so very important, deserve proper care, and I've learned a very tough lesson. I never realized that two little bones could cause so much pain.

THANK YOU for your post!!!! I think the large toe spacers are helping me a great deal. I also bought something called Icy Hot Naturals for $1.99 at Walgreens, and it has helped as well, but certainly not as much as the large toe spacers! Today I actually feel as if the area will heal!!! For a long while I've wondered if I would ever be able to walk with ease again. Right now I don't want to wake up from the dream and realize that I'm back at square 1!!! It's only my second day of wearing the toe spacers, but I really hope they continue to help improve both feet, as I know my right foot was compromised as well from the poor alignment I had when walking on the outside of my foot!!!
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Old 19th October 2011, 04:01 AM
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Default Re: Chronic Sesamoiditis - not sure where else to turn.

This is an additional add-on from my last post about toe spacers. Although they helped for a bit, I didn't get the true relief I needed.

At my wit's end, I started looking on the Internet for something that might work from the inside out. Has anyone out there tried coconut oil? I've been taking 2 tbsp. of coconut oil daily for the past week or so. I never realized that coconut oil has such a healing effect on the body and immune system. I've also started oil pulling, which helps draw toxins out of the body. And, what the heck, I also started drinking Bragg apple cider vinegar with 1/2 tsp. of baking soda (to balance out the acid) in the mornings. I'm taking vitamins on a more regular basis and have been making an effort to clean up my diet.

I think it might be the coconut oil that has been helping the most, although I'm going to keep up with the oil pulling and ACV as well.

My foot is suddenly feeling better. I've had persistent problems with itching/burning/swelling in the affected foot, but I've had problems as well with my other foot.

I'll have to report back later, as time goes on, to see if there is lasting improvement.
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Old 19th October 2011, 04:03 AM
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Default Re: Chronic Sesamoiditis - not sure where else to turn.

It's got to be organic, pure extra virgin coconut oil, btw.
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  #23  
Old 19th October 2011, 09:34 PM
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Default Re: Chronic Sesamoiditis - not sure where else to turn.

DISCLAIMER: THE FOLLOWING IS OFFERED GRATIS AS GENERAL INFORMATION ONLY, AND, AS SUCH, MAY NOT BE APPLICABLE TO THE SPECIFIC QUESTIONER AND/OR HIS/HER PROBLEM. IT IS CLEARLY NOT BASED ON ACTUAL KNOWLEDGE AND/OR EXAMINATION OF THE QUESTIONER OR HIS/HER MEDICAL HISTORY, AND IT CAN NOT AND SHOULD NOT BE RELIED UPON AS DEFINITIVE MEDICAL OPINION OR ADVICE. ONLY THROUGH HANDS-ON PHYSICAL CONTACT WITH THE ACTUAL PATIENT CAN ACCURATE MEDICAL DIAGNOSIS BE ESTABLISHED AND SPECIFIC ADVICE BE GIVEN. NO DOCTOR/PATIENT RELATIONSHIP IS CREATED OR ESTABLISHED OR MAY BE INFERRED. THE QUESTIONER AND/OR READER IS INSTRUCTED TO CONSULT HIS OR HER OWN DOCTOR BEFORE PROCEEDING WITH ANY SUGGESTIONS CONTAINED HEREIN, AND TO ACT ONLY UPON HIS/HER OWN DOCTOR’S ORDERS AND RECOMMENDATIONS. BY THE READING OF MY POSTING WHICH FOLLOWS, THE READER STIPULATES AND CONFIRMS THAT HE/SHE FULLY UNDERSTANDS THIS DISCLAIMER AND HOLDS HARMLESS THIS WRITER. IF THIS IS NOT FULLY AGREEABLE TO YOU, THE READER, OR YOU HAVE NOT ATTAINED THE AGE OF 18 YEARS, YOU HEREBY ARE ADMONISHED TO READ NO FURTHER.

I think the above paragraph is a must for anyone responding to anyone's request for medical information.
Having said that, I too will start by saying you need a diagnosis. From what you have stated, the diagnostic tests demonstrate mild changes. For sure you have described hallux (great toe) Limitus (limited range of motion). There are many causes associated with hallux limitus including but not limited to sesamoidits. In early stages of hallux limitus, the pain can be moderate to severe and the bone changes, minimum. Non operative approach is to limit joint motion, stiff sole, low heel shoes, NSAIS, occasional steroid injection to control inflamation. However, unless the mechanics of your foot can be controlled appropriately, the cartilage within the joint will get damaged and the condition has a good chance of worsening. In early stages, intraarticular (in the joint) injection of Platelet Rich Plasma, PRP, may show promise in the healing of minimally damaged cartilage, but the use of PRP without reducing the damaging forces to the joint will not be lasting.
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Old 10th November 2011, 08:12 PM
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Default Re: Finally getting rid of pain

I hope this will be the last time I post on here. I've realized that wearing shoes with the toe box wide enough so that there is plenty of room for all my toes to stretch out in is the way to go. I stopped wearing socks with my running shoes because my feet couldn't move as well. The only things I've kept up with, aside from taking vitamins, are oil pulling with virgin organic coconut oil, and taking around a tsp. of coconut oil a day. Bruce Fife has a book about the positive effects from oil pulling and its help for the immune system as well. Well, here's something else: I slather Vicks Vapo Rub on my foot each night before bed and put a sock over my foot, and I've been doing some meditation, visualizing my foot as healthy and strong.

I can really understand and empathize with everyone who has suffered from sesamoiditis. Anyone who hasn't suffered from this doesn't understand, I don't think, the true ramifications of it and the terrible ordeal it causes. I wish all the best to everyone who has experienced sesamoiditis and sesamoid fractures. I thought about having surgery sometime in the future, as I thought I would never heal, but gradually the pain is going away. At times, though, I experience quite a bit of pain if I'm doing something too jarring for my foot, and I have to be careful. I'll be happy to finally be able to look around and admire the beautiful scenery, when out walking, rather than concentrating on the nagging pain in my foot!
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Old 22nd December 2011, 09:39 PM
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Default Re: Chronic Sesamoiditis - not sure where else to turn.

After all my messages, nothing worked long term. Nothing. However, I'm now slathering castor oil on my feet before bed to see if that works, and putting socks on. Someone had posted about using a combo of castor oil and Vicks Vapo Rub for a bone spur and that it helped tremendously. I thought, what the heck, I have a bone spur as well as sesamoiditis, why not try it? I'm just using castor oil at this point. I have felt the best with this remedy but am not going to say any more because I don't know if it's truly healing the sesamoiditis and bone spur. But as of now, I can actually walk without having to dwell on how awful and debilitated I'm feeling.

If this helps, heals, etc., I will certainly post here again.
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Old 22nd May 2012, 01:36 AM
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Default Re: Chronic Sesamoiditis - not sure where else to turn.

As a 4th year medical student I would , in a hypothetical case such as (legal purposes), treatment of a dancer's pad/met pad that you can get online for a few dollars (4-6 bucks). It is important to keep the edge of the pad proximal/behind the metatarsal head of the metatarsal phlanageal joint involved. Keep in mind that this does not treat the etiology of the problem (the sesamoidal ligament may be torn, capsule involvement,AVN). If there has been any weight gain associated with the problem then losing weight while offloading the region may produce better results as well as realizing that the met pad will need to be changed during offloading as they wear down at around 2 weeks depending on activity. Also, the treatment depends on the extent of the damage done and again, the etiology/differentials would need to be assessed for long term success. I would try this conservative option to allow the region to repair itself/fibrose before considering surgery. Even if there is a complication from surgery they could repair or fuse the 1st MTPJ as one of the worst case scenarios. This might pose a problem if you're very athletic, but otherwise you would have normal functioning (but wouldn't be able to have motion at the 1st MTPJ with this complication).

Again, conservative treatment is the best treatment for this [hypothetical] case. Xrays are important, but they will not rule out AVN, though the general rule is to see if symptoms subside after offloading for a couple of weeks(based on clinical history). You can always attempt surgery after exhausting the conservative options.



Quote:
Originally Posted by Unregistered View Post
Hello All, it has been a year and I have still not been able to heal my sesamoiditis in the right toe. It is difficult. I wear specially made insoles, I've attended therapy, I ice my foot, I take calcium and Cetyl-M supplements for bone strength and reduction in inflammation, and I hardly walk anywhere. I ride a bicycle to class and back home. I rest my feet and use a stationary bike for exercise. Yet, the pain is still there. I refuse to get cortisone injections and surgery because I have not heard of any success from these methods. I would like to try the boot but I doubt it will help, since I have already greatly reduced standing and walking in my daily life. I do not know what else to do. I hope to get an MRI, perhaps that may show something that x-rays didn't, but other than this, I am just hoping to hear a success story somewhere. Good Luck to you all.
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Old 23rd June 2012, 03:36 PM
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Default Re: Chronic Sesamoiditis - not sure where else to turn.

After 6 years of sesamoiditis, I've managed to completely heal them via daily cycling on a stationary bike. The trick is to find shoes that won't cause re-injury (I have found that the Birkenstock Arizona sandal works perfectly for this.)

I believe this works by pumping blood into the toe and realigning the leg.

Give it a try!
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  #28  
Old 22nd September 2012, 04:51 PM
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Angry ow my foot hurts

When I was 15 I started to develop pain in the ball of my left foot. It took almost a year for me to see a Dr for it. When I finally did the Dr told me I didnt have enough padding on the ball of my foot and he gave me a steroid injection and sent me on my way. He told me to return every 6 month's for another injection. The initial injection seemed to work for a while not to mention hurt like crazy so I didn't go back. After a year or two on it started hurting again sometimes more intense then others. I didn't even have to be standing for the ball of my foot to start aching. I just dealt with it for years and complained occasionally, well my girlfriend got tired of me complaining and made me see a Dr. I'm 23 now and finally went back yesterday. The Dr said I had cracked one of my sesamoids and was developing arthritis in it and that's what was causing the pain. She immediately recommended surgery to remove the sesamoid bone. I guess I'm just asking for opinions I've tried shoe inserts with no results. Im interested into the coconut oil I'll look into that. I work full time and I'm a full time student I can't really afford to be off my feet and I m not a fan of hospitals so I'd like to avoid surgeryIf possible. I got another injection in my foot yesterday and it hurts to bad to walk today.
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Old 15th November 2012, 02:15 AM
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Default Re: Chronic Sesamoiditis - not sure where else to turn.

Found this thread and thought I would add my 2 cents. Broke the medial sesamoid, lots of pain and limping. Went through pain relievers, braces & supports. Had the surgery. Minimal relief and then things got worse with foot jamming at the toe when I walked leading to much more pain and limping. Got a second surgery taking out the other sesamoid and shortening the toe. Fast forward 30 years and I am glad to have gone through the surgery. As long as I have good fitting shoes, wide at the toe and very little heel, I have minimal problems. Hope to find something on this site on possible accessories to help with the discomfort I have now and then. Thanks.
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Old 21st January 2013, 08:25 AM
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Default Re: Chronic Sesamoiditis - not sure where else to turn.

I hope everybody here has found relief from their sesamoiditis conditions. I have dealt with that injury (I am a dancer) and can empathize with the lack of treatments offered other than surgery.

I and my fellow dancers have had success with a Rolfer who has developed a protocol for care of our feet. The sesamoids, especially it seems if you have a bipartite sesamoid, can get out of alignment. He is able to work things back in to alignment, which in conjunction with rest/prevention keeps us in good (but careful) dancing order. He's even done wonders to arrest the development and correct the alignment of my big toes (bunions).

I normally am not one who would post anything that could be construed as medical advice, and I don't want anybody to think of this post as such. However, because I know that there is little information on alternatives to surgery I thought I would mention Rolfing as something that could be considered before something as invasive as surgery.

If it's something you do consider, be sure to find a certified Rolfer who has a lot of experience working with feet. Mine works with a lot of dancers and athletes and has plenty of experience of working with foot injuries and fixing the compensatory patterns that develop.

Again, this is not medical advice and one should seek treatment under the care of and by medical professionals.

Best of luck to everybody out there looking for answers.
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